So, Dr. Jennings has intervened once again on our baby's behalf and has decided to put him back on the conventional ventilator as opposed to the high-frequency ventilator he's been on all weekend (and has made little progress). What's hopeful about this is that, when Rafa was on the Cold Fire, he made all kinds of progress in terms of his lungs opening up and gaining volume. He's also losing fluid even though he's taking on more blood products, which is a positive sign as well.
It's just frustrating to feel like we have to be the ones chasing down information and doctors to make the best decisions for our baby. We knew he was making progress on the other ventilator, so why wasn't he placed on it sooner?
Let's just pray that this is the choice we need to move Rafa to the next level of his recovery.
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That is GREAT!!!!!
ReplyDeleteYou all are doing such amazing, incredible work for Rafa. I am in awe - he couldn't be in better hands!
Love forever, John
This is wonderful news. I'm glad to hear about Dr. Jennings' decision. We continue to pray for little Rafa and all of you. We're focusing on Rafa's recovery. Lots of love.
ReplyDeleteGood news indeed. Dr. Jennings is definitely the one to trust. Love you so much.
ReplyDeleteGlad to hear that Jennings is taking a proven approach...please keep us posted!
ReplyDeleteThinking of you all right now. Lots of love, M, J, and D
ReplyDeleteThinking of you right now too. Hope so much that the night went well for Rafa and that the chest x-rays look good today!! Love you guys so much! xoxo
ReplyDeleteThinking of you and sending love. Barbara
ReplyDeleteI'm also glad to hear that Dr. Jennings made the decision to put him back on the conventional ventilator. I'm more than sure Rafa is proud to have his mommy, daddy and grandma advocating for him. You're the best! Sending positive thoughts, healing prayers, and lots and lots of love and everything else we can for a speedy healthy lung recovery.
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