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Our son Rafael was diagnosed with a severe left-sided diaphragmatic hernia at 23 weeks in utero. He's been a fighter ever since. This is his (and our) story.
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Blog Archive
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2009
(115)
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August
(50)
- Hi Baby...
- Gratitude and Love Overflowing
- Rafa's Flight
- Honoring Our Little Healer
- Earning His Wings
- Day 34-A Bit of a Downward Spiral
- Rafa is having difficulty stabilizing again--pleas...
- Day 33-A Stable Night, With Some Tweaks...And Frie...
- Day 32-And we ride on...
- Update-Rafa is stable, thank God! They've placed h...
- Team Rafa, mobilize!Rafa's stats are all over the ...
- Day 31-Re-establishing Equilibrium
- Day 30/31-Baptism by Fire: Mommy and Daddy's First...
- Day 30-A beautifully boring day...
- Day 30-A safe, stable night off of the machine...
- How the ECMO went down...
- Rafael James Carlos Escobar is officially off of E...
- TEAM RAFA, MOBILIZE!
- Our Precious Boy
- Day 29-Such numbers to wake up to!
- Day 28-What a wonderful birthday!
- Day 28-HAPPY FOUR WEEK BIRTHDAY, RAFA!
- Day 27-Murky Waters
- Rafa has to have his circuit changed today. Please...
- UPDATE-Back on the conventional vent
- Sad Times...
- Day 26-Wait and See
- Day 25-At the Crossroads
- Day 25-Team Rafa, mobilize!
- Day 24-A quiet day in Boston town...
- Day 24-Holding Our Breath
- Day 23-Surgery complete!
- They're closing him up...Dr. Jennings should be ou...
- Rafa just got into the OR!
- Still haven't gone down to OR yet--we're in the wa...
- Need your help! Rafa has to go back to the OR to i...
- Day 23-Cycling today? Probably not. My bike is in ...
- Day 22-Do we dare to cycle?
- Day 22-Taking time out to reflect
- Now that surgery is behind us...
- Day 21-"When I look at you, I know it's gonna be..."
- Update 3-They're closing him up! He's only got one...
- UPDATE 2-Surgery is going well. Rafa is rockin'!
- UPDATE-Rafa is stable, has taken his anesthesia we...
- Day 21-Happy Three Week Birthday, Rafa Bird!
- Day 20-And a miracle occurred...
- Day 20-Guess who doesn't have to have his airways ...
- Day 19-One Hill Climbed, Another to Follow...
- Day 19-"Have to Admit, It's Getting Better..."
- Day 18-Rest, Rest, and a Pneumothorax??
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August
(50)
About Us
- Mommy to My Hero(es)
- NJ, United States
- What a difference (almost) two years make. We are set to welcome our two new sons, Luca and Xavier, and couldn't be more pleased, whole, and hopeful. Our family is getting a new start. Thank you for that, Rafa Bird, and our many living angels who have made this dream a reality.
Great news! Hoo-rah!
ReplyDeleteWonderful news!
ReplyDeleteJoy!
ReplyDeleteBarbara
Amazing!
ReplyDelete