Monday, August 3, 2009

Day 20-And a miracle occurred...

Our baby boy finally got the break he so richly deserved!

Dr. Jennings ordered another rigid bronchoscopy to investigate how things were looking in terms of his upper airways before his big surgery tomorrow. And what he found was absolutely miraculous.

Because Rafa has been so excellent at growing lung, the lung he's grown has pushed out and propped up the airways that used to be so floppy! This means that the only procedure to be done tomorrow is pushing his heart forward so that his right bronchi can continue to expand and strengthen. Not because this is minimal by any means, but it's far less invasive and risky than what was slated for tomorrow and cuts his surgery time by two-thirds. WOW!

Needless to say, we were body-wracked with sobs of relief and joy this morning to hear the news. Miracle Boy has once again exceeded everyone's expectations and set his sights high.

And so have we.

Team Rafa has mobilized and it has won! His name doesn't mean "God healed" for nothing.

And for that, we are eternally grateful.


  1. Just wonderful! Miracle boy, indeed. Sending lots of love and prayers your way.

  2. Yay Rafa! Such amazing news. Still sending loads of love and hope your way tomorrow and always.

  3. This is FANTASTIC news!!! We continue to keep Rafa in the light. Keep the miracles coming!

  4. That is FANTASTIC!!!!!!
    Rafa is indeed an amazing little guy.
    Could it have been all that energy coming your way from the Star Trek convention? ;)
    love forever, John

  5. SO happy to get this good news! All good thoughts and prayers and love your way. xoxo

  6. Joy! This is the best news. We are so, so happy for you. Rafa continues to be a miracle child. We continue to pray for him and hold you all in our hearts.

  7. I love hearing everything about this amazing little guy! Your entire team is in my prayers!!

  8. Such a relief and what a break for the little fighter. Thinking of you tomorrow. xoxo

  9. SOOOO happy to hear the news!!! Will be thinking of you all, all day tomorrow. Hugs and warmest, strongest lung-growing thoughts to you all from me and Markus.

  10. Amazing! So glad to hear what good lung work Rafa has been doing, and it's so great that the procedure today can be simpler. Way to go, Rafa! We'll be sending good thoughts your way. Lots of love, M, J, and D