Wednesday, July 22, 2009

Day 8-"On the Hot Tamale Train!"

For those of you who watch "So You Think You Can Dance," the reference is clear. Of whom am I speaking? Why, that would be Rafael James Carlos Escobar, of course!

We saw the most exciting X-ray to date, one that showed almost complete lung development on the right side and...drum roll please...partial lung development on the left side!

That's right, our little one has lung on the side of his body where all of his organs had squished up and stunted its development, and it's almost fully caught up with its partner. Understand that there's a lot to be determined, in terms of functionality, air flow, etc., but since he's only eight days old, we think it's hella good progress. He's also got 5 CCs of breath entering his lungs, which puts him about halfway toward the big ECMO wean conversation. We were, and are, over the moon...

We were particularly excited to share this news with our dear friend, Auntie Andrea, who came from NYC by way of Portland, Maine, to see us for the next couple of days. We are so thrilled to have her infectious smile, positive outlook, and rah-rah sensibility near us, it makes the next 48 hours a little brighter. Thanks, Ms. Kassar, for being a friend.


  1. Great news...Rafa is making great progress! I hope everyday is another step forward. As a fellow CDH mom, I am here to support you, don't hesitate to reach out if you need anything at all! Celebrate every second, every milestone and every step forward. My family is sending positive thoughts your way!


  2. More wonderful news. That is fantastic! I am joining you in over-the-moonness!

  3. This is so exciting! I'm doing a little dance myself. Go Rafa!

  4. That is *amazingly wonderful* & spectacular spectacular!!
    So happy!!!
    As soon as you are ready for another visitor, a
    say the word!
    Love you guys, J

  5. Markus and I are both so excited for you and Rafa! I had a good run of knitting his blanket, I'd like to think its growth and his are related-- and so I'd better get back to it! Hugs to you all!

  6. That's wonderful news! We are all excited at home! Abuelita sends lots of hugs and kisses to baby Rafael! Keep going little one!

  7. Sounds like a miracle in the making! We are so happy with this news.