Tuesday, June 16, 2009

Pedicures and Helpful Hints

First of all, thanks for checking out the two pics from Kristen's visit! Better late than never!
Secondly, my outing of the day (I'm allowed to be "off" bed rest for about an hour each day) was to get pedicures with Mom! SO satisfying! I'm sure it's improving the experience of the doctors, nurses, and technicians to be looking at cleaned-up, pretty toes.
And lastly, big thanks to Dot, because I've finally found a one-on-one CDH connection online! Her name is Kelley and she has a four-year old son who came through the SHANDS CDH clinic at the University of Florida with a left-sided diaphragmatic hernia. I can't tell you what a wealth of information, support, and helpful tips she's already been, only after 24 hours! The biggest takeaway suggestions:

I'll be taking a snuggly/teddy bear with me to the hospital to fill the void in my arms left behind by not being able to hold Rafa right after he's born.
Kelley's son Michael's lungs tripled in size only 13 hours after his surgery to move his organs to where they belong.
While he had pulmonary hypertension and reflux at some point during his recovery, Michael has been released by his cardiologist, pulmonologist, and gastroenterologist because of all of the progress he's made.
Most importantly, Kelley feels Michael pulled through because he always knew there was a family waiting for him on the other side, loving him, fighting for him, and Rafa's already got that in spades.

What a blessing she, her son, and their story have turned out to be!
Wish us luck tomorrow--we have another ultrasound, cervical check, and consult with our OB, Dr. Wilkins-Haug.


  1. Awesome pics -- you're huge!! (in a good way, of course :) Glad the pedi was good. Good luck tomorrow! xoxoxoxoxo

  2. Yay pictures! Keep them coming. And yay online connection... that sounds VERY helpful. =)

  3. So glad you found the online support. Mine helps me a lot. You look great and it's nice to see you smiling. How is your Mom? I worry about her too, with all the stress. Again - my love to all - tell Rafa I'm looking forward to meeting him.

  4. I love the pictures. Thanks for sharing. And it's so great that you've found a one-on-one connection. Kelley's story gives us so much hope.